[Jenna]

I posted this on FB too, thought I would post it here for those of you that aren't on FB but would like to know.

Blood tests are all back in. Now I have to get more blood tests - they want to do a detailed panel for Lupus & RA. They are also having me come in for a chest CT scan next week to see if I will have to have my Thymus removed (I guess there could be a tumor). Right now dr thinks it is likely to be Myasthenia Gravis, which is so rare that it only affects 14-20 out of 100,000 people in the US. At least I am unique? Sheesh! Anyway, there is no cure, and the causes are unknown. Down side is that I can have a "myasthenic crisis" during which I could be unable to breathe. This is what causes the highest instance of death with this condition. I did have trouble breathing and swallowing during the last "flare up" a week or so ago. It also makes me more vulnerable to other autoimmune disorders such as Lupus & RA. Weird thing is that it only happens during the week leading up to and the week during my cycle. It's so rare that my dr really knows nothing about it. No information I have read or been told about MG says anything about it coinsiding with menses, so I think I will still pray that it is a hormonal imbalance & push to see an endocrinologist. Prayers are welcome.

Internet did say I should get plenty of rest & avoid stress & heat. Obviously they have never met my children or lived in San Antonio in the summer! LOL

[teecee]

Oh Jenna - this all sounds so scary for you! I'll certainly be keeping you in my prayers. Hugs!

[Becster]

That's frightening, Jenna. I will certainly pray for you and all that you are facing. *hugs*

[SodScrap]

Hope you get definite answers soon!

[bee]

Thinking of you, hope everything turns out well in the end xxx

[AggieB]

Oh, dear, that sounds scary. Adding my prayer for you - hope it is not as bad as you fear.

[elibar]

Thanks for sharing. Take care - prayers are with you!

[jenrou]

Hi Jenna,
I hope you will go to a Dr. who knows more. I feel for you and will keep you in my thoughts. I can only hope it is like my bad liver reports that turned out to just be something to keep an eye on, nothing major. They scare you to death--poorly put!
Keep us informed and I hope you can rest and do what you need to do.
Jean (native TX living in VA)

[Sara Arell]

Oh, sweet Jenna! I hope you get some definitive answers quickly - I'm sure you are going for a second opinion, aren't you? Bless your heart - I will keep you very close in thought and in prayer. Scrap Girl prayer is so powerful and I know we are all joining hands surrounding you with love and hope. Can't you just feel the love?

Please keep us posted! I'm not on FB any longer so I'm glad you posted it here. I did get on FB for a couple of hours one day cause Rich was doing a background check on an applicant for the police department and he needed to see her FB page, but I've taken my page down again - hackers! They posted some terrible things that sounded as if I were posting and so I just took it down. I don't know how to delete it entirely - it still shows up, but I don't do anything on it.

Sending big squishy hugs, my friend.

[Cheri T]

Jenna, on 22 February 2013 - 01:15 PM, said:

Internet did say I should get plenty of rest & avoid stress & heat. Obviously they have never met my children or lived in San Antonio in the summer! LOL

Many prayers and good thoughts for you! *hugs* I did have to lol at your comment about children and the heat of the TX summer - do your best with the stress and heat, and for goodness sake keep that awesome sense of humor - it will serve you well in all areas of life:)

[cherryyllaann]

I too hope you are directed to a doctor who has more information on this condition. I hope that it does not flair up again and that your condition can be stabilized.

[LaLo1103]

Sounds frustrating Jenna! I will be thinking of you and praying that you get answers quickly.

[mbc72]

Praying that you get some answers soon.

[April Showers]

Don't you love it when the answers just lead to more questions? Praying you get the answers you need!
My brother had a tumor in his thymus (they found it in the x-ray for the broken collar bone he got playing flag football).

[Jster025]

Gotcha on my prayer list. I’m going to try to stay positive like you are. Very scary times, I know. It’s always so awful when the doctors are not sure what is causing problems and start mentioning things like this. Make sure you get lots of second opinions.

[ladyscrapalot]

Adding my prayers. Keeping searching out information and find any doctor who could possible help.

[tinkerbell11]

I hope that your Doctors can figure this out soon Jenna, Praying for you and your family!

[MariJ]

So sorry Jenna - sending best wishes and healing thoughts and hopes for the best care and information possible for you. Take care.

[CRS]

Continuing to pray for you Jenna. I'm sorry the answers didn't really answer anything!

[Florida granny]

Keeping you in my thoughts, Jenna. Hang in there!

[Jane in N.Z]

Prayers going outto you Jenna but try not to look at things on the internet until your diagnosis has been confirmed as it will make you stressed and worried.

[KFiasco]

Keep your head up Jenna, and I agree with Jane, stay away from that internet.

Karen

[Belle]

Still praying for positive results Jenna. It is so terrible that you are suffering like this. Keeping you in my thoughts.

[Jeanne Lee]

Jenna, praying for answers, peace and comfort for you.

[Nica]

Thinking of and praying for you! **hugs**

[Jenna]

Thanks for the positive thoughts and prayers, ladies. It's stressful but I'll survive. I still plan to press my doctor for a referral to the endo as well as seeing the neurologist and I guess she's going to have me see a rheumatologist too. I guess it does explain why I have such a hard time losing weight. If my muscles aren't able to react to impulses to move, then even a light weight feels like work to me. I can do a workout & think I worked really hard because I worked until failure, but I have NO soreness the next day. That means that I didn't do enough to challenge the muscles. If I can't physically do enough to challenge the muscles, I can't expect to get in better shape. Maybe we can finally get this figured out so I can get some REAL training in & finally see some progress for all the work I put in!

[luckyladybug]

Good job pressing for more information from specialists, Jenna. The more doctors you have on your team the better, especially if you are looking at a medical "head scratcher."

and I'm happy to be on your "prayer team" too!
Hugs!

[Jo Corne]

sending positive thoughts your way Jenna, you are doing the right thing by getting to see all the doctors you want, please keep us updated
take best care

[Sherry Lynn]

Jenna I am just seeing this --- please know that you and your family are in my thoughts AND prayers!

[Sara Arell]

Praying for you, Jenna - I think about you every day, sweetie!